It has recently dawned on me that many of the recipes here are appealing to folks who have Diabetes. Which I find very interesting. Someone mentioned to me that Crohn’s and Diabetes (Type 1) are related – they’re both autoimmune responses (autoimmune diseases).
So it has me thinking and researching. But researching is a dangerous pass time for me – it might be for you as well. For me, it’s partly because I use the Internet, and it’s hard to tell what to believe. Especially when you’re dealing with things that doctors really don’t understand, and no one knows why they happen. It could be the environment, infection, genetics, and who knows what else.
No matter how much research and evidence I uncover, how many blood tests I look over -I can’t rationalize what works and why. I just know that there’s a certain level of toxicity for every drug (even Tylenol), and it’s not to be taken lightly.
Well, that came to an end for one boy who became a teenager and decided that this diet stuff was not for him right now. Kind of. He wanted drugs and he wanted to grow ASAP.
Let’s just say that this boy is a fictional character, who might resemble a real person, but for the sake of privacy, we’re going with fictional. This boy has been through the wringer with a weird infection after a vaccine in first grade which sent him to the first of several urgent visits to Children’s Hospital. Then it was diets, blood tests, pancreatitis, several emergency room visits, all the while humoring his mother, who kept on hoping that all would be solved with a gluten-free diet. Wouldn’t that be simple? Who the heck likes pizza anyway? I mean, most pizza tastes like cardboard, right?
SCD was wonderful for his body and his lab tests, but that would come to an end during an all-inclusive resort eating spree.
So you may be wondering: where is all this rambling leading to? While it would take a very long post to tell you what one boy has gone through thus far battling Crohn’s, such as weird knee inflammation that side-lined his competitive sports, here is what I do want to share right now.
Kids are at a critical juncture in life because they need to grow. It’s as simple as that. So, if you have a child with Crohn’s or a similar immune response that is inhibiting growth or health, here is what is working for us at the moment:
- Check out this book: Beat Crohns! Getting to Remission with Enteral Nutrition, by Margaret A. Oppenheimer.
- We use nutritional drinks. We’re currently going through two Ensures a day (yeah, full of corn syrup), plus a healthy diet (SCD, or close to it). I haven’t been able to reproduce a tasty version of this drink yet, but not because I haven’t tried. (Updated on 9/13/10: We no longer use Ensure and or similar brands. Stopped using them and minor colitis symptoms stopped too.)
- Do anything to get the inflammation down because it zaps body energy, leaving little for growth. To combat inflammation, we’re using a low dose of methotrexate.
- Read this article in Nature.
So, right now we’re dancing with the devil. This teenager is still eating very close to SCD – primarily protein, fruit, and vegetables. And no chocolate (I’m asked this a lot – I’m the chocoholic). His pure SCD days definitely made an imprint, and I hope he will refer to it when all this growing stuff is over.
One other note: I do believe that what works for one person, might not work for another, so your mileage may vary.